Privacy & Consent Statement
Your Privacy Matters
We are committed to protecting your privacy and ensuring that your participation in the Healthy End of Life Planning (HELP) platform is informed, voluntary, and secure. This page outlines how we handle your data, what your participation means, and your rights as a user.
1
Participation is Voluntary
By accessing this platform and completing the Death Literacy survey, you are voluntarily participating in a digital self-assessment designed to support personal understanding and contribute to broader research on death literacy. You may choose to stop or leave the survey at any time.You are not required to provide personal information unless you wish to save your results or access personalised reports.
2
Informed Consent
By clicking “Start survey” or submitting your responses, you consent to:
• The collection of your survey answers
• The use of your responses to generate personalised feedback and recommendations
• The anonymous use of your data for research and reporting purposes
3
How We Use Your Data
Your data helps us:
• Provide you with customised results and insights
• Improve the platform experience for future users
• Contribute to research on public understanding of end-of-life issues
4
What Data We Collect
We may collect:
• Your survey responses
• Optional demographic info (e.g. age group, cultural background)
• Email (only if you choose to receive your report or create an account)
• Access or request deletion of your data
• Withdraw your consent at any time
• Contact us with questions or concerns
5
Data Security
All data is stored securely on encrypted servers. Access is limited to approved research staff and system administrators.
We take reasonable steps to protect data from misuse, interference, loss, or unauthorised access.
6
Your Rights
You have the right to:
• Access or request deletion of your data
• Withdraw your consent at any time
• Contact us with questions or concerns
7
Ethics & Governance
This project is guided by ethical research principles and complies with relevant data protection standards in Australia, including LaTrobe University’s Code of Ethics.
Final Note
Using this platform is entirely optional, and you are welcome to engage with the content in whatever way feels safe and appropriate for you.
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